Patient Information Sheet project

This Patient Information Sheet (PIS) project is being funded by a Public Engagement grant from the Wellcome EPSRC Centre for Medical Engineering (CME) and is being led by Dr Giovanna Nordio, a postdoctoral research associate at the Centre for Neuroimaging Sciences at King’s College London, with support from Dr Mattia Veronese. The project was initiated during the summer of 2020 and is due to be completed before summer 2021.

The project will generate modules (containing image / example text / graphic elements) that can be used to construct an illustrated PIS, adaptable to the PET scan (Positron Emission Tomography) and / or MRI (Magnetic Resonance Imaging) research studies conducted across King’s College London imaging facilities (e.g., the PET centre, St Thomas’ campus, and the Centre of Neuroimaging Sciences, Denmark Hill campus). From its creation and implementation, this tool will assist scientists to explain to their participants the study protocol and obtain fully informed consent.

In the modular structure of the PIS, each module represents a specific step of the study. This will allow the information sheet to be easily adapted for different clinical studies, by simply removing / including specific modules related to the study of interest. The sheet will contain visual elements that are also designed to be editable and adaptable for different scenarios. Both the PIS and the elements within it will be designed to be as accessible as possible to all readers.

The practical, day-to-day progress of the project is being recorded in detail on the Neuroscience & Graphic Design website, which is dedicated to my collaborative work with King’s College London in general and the Centre for Neuroimaging Sciences in particular. On that website, the PIS Project page provides an overview of the project and includes links to all of the relevant blog posts, describing each step of the project and showing many images of the work. It is therefore not my intention to duplicate all of that content here.

Instead, the content on this website will focus on the research aspects of the PIS project, as it follows on directly from my PhD research but with a significant widening of the scope. Instead of looking only at peer-to-peer scientific visual communication, it concerns communication between a scientist (researcher or clinician) and a patient (or clinical trial participant) – i.e., visually communicating scientific information to the general public. This will require a different approach in terms of information design, bearing in mind that the intended audience will have little or no knowledge of specialised scientific visual languages. However, it should still be possible to use the approach I devised during my PhD research, that of combining adaptable visual elements, to create the patient information sheets.

This pinned blog post will serve as the main summary page for my research work on this project and will contain links to related blog posts and to work on the Project Portfolio page. Again, not all of the interim illustrative and design work will be posted on the portfolio page, but examples of the work at significant stages of the project will be posted and links provided here.

Related blog posts on this website
  1. Designing the PIS research project – how the work can be planned as a research project, as well as a practical graphic design / illustration brief.

Related portfolio galleries on this website
  1. Patient Information Sheet – Stage 1 – the example PIS modules that were submitted for review by the FAST-R team at the Maudsley BRC in December 2020.
  2. Patient Information Sheet – Stage 2 – the complete example PIS that was submitted for review by the FAST-R team at the Maudsley BRC in March 2021.

Project time schedule

Items in italics have been completed – for much more detail on how these steps were accomplished, see the PIS project webpage and its list of blog posts on the collaboration website.

Date Activities
June – Sept 2020– collect PIS examples (GN/MV)
– choose 2 PIS templates to start with (GN/MV)
Sept – Dec 2020
breakdown of templates, identify main components (GN/MV/GB)
– start to design a graphic illustration for each component (GB)

– simplify text to be combined with graphics (GN/MV)
– send first draft to FAST-R service (GN/MV)
– ask REC (Research Ethics Committee) for opinion (GN/MV)
Dec 2020 – Feb 2021continue design of PIS templates (GB)
– design a web-based solution to host PIS (GN/MV/GB)
review PIS template based on feedback from FAST-R/REC (GN/MV/GB)
– send second draft to FAST-R service (GN/MV)
Feb – May 2021finalise design of the PIS templates & modules (GB)
– upload PIS to the website(s) (GN/MV)
May – June 2021– present project and its outcome at departmental seminar (GN/MV/GB)
– prepare summary of work completed for grant award (GN/MV)
Original PIS project time schedule

One Comment

  1. […] see this pinned blog post – Patient Information Sheet project – for the background information regarding this project, and to see how this post fits into […]


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